JCPSLP Vol 20 No 3 November 2018

Nutrition, swallowing, mealtimes: Recipes for success

Top 10 Paediatric feeding and dysphagia management: 10 useful resources to chew on Pamela Dodrill

support and advocacy for other families of children with feeding disorders. I am honoured to be part of the Medical Advisory Council for Feeding Matters, and genuinely love working with this group of committed parents, health professionals, and other volunteers to promote awareness of this issue and share information. The website (www. feedingmatters.org) contains information for families and caregivers (e.g., information, links to resources, links to other parents and providers, Infant and Child Feeding Questionnaire), as well as for health care providers, including details of upcoming workshops and conferences. 5. Feeding Tube Awareness Feeding Tube Awareness is another not-for-profit group established by parents, which specifically focuses on the issues of children who require enteral feeding. The website (www.feedingtubeawareness.org) contains useful information and images regarding different types of feeding tubes, discusses the pros and cons of various tube feeding options, and provides general guidance for caregivers regarding important issues they should be discussing with their child’s health care providers. 6. Speech Pathology Australia (SPA) Speech Pathology Australia has many useful fact sheets on its website (www.speechpathologyaustralia.org.au) related to feeding development and paediatric dysphagia. The website also contains details of local providers who specialise in this area, as well as association-sponsored workshops on this topic. SPA holds a national conference each year, usually in the first half of the year. There are usually many invited and submitted talks on paediatric dysphagia, and this is a great forum for speech pathologists to share information, develop connections and network. 7. American Speech Language Hearing Association (ASHA) The American Speech Hearing Association also has a number of useful fact sheets on its website (www.asha.org) related to feeding development and paediatric (or “pediatric” as it is spelled in America) dysphagia. The website also contains details of association-sponsored workshops on this topic. Similar to Speech Pathology Australia, ASHA holds a national conference each year, usually in November, and there are always numerous invited and submitted talks on paediatric dysphagia. 8. Dysphagia Research Society (DRS) and European Society of Swallowing Disorders (ESSD) Dysphagia Research Society holds an annual scientific conference each year in the United States or Canada, usually in March. This is a gathering of paediatric and adult

1. Dietary guidelines, including infant feeding guidelines Any speech pathologists working in paediatric feeding and dysphagia should be familiar with the national dietary guidelines and infant feeding guidelines. In Australia, the National Health and Medical Research Council publish updated guidelines every few years. The complete document, as well as summary documents, brochures, and posters can be found at www.nhmrc.gov.au and www. eatforhealth.gov.au. 2. Ellyn Satter Ellyn is a paediatric dietitian and family therapist who has worked for decades in the area of childhood feeding, and is a well-respected expert on this topic. Her website (www. ellynsatterinstitute.org) and books (e.g., Feeding with Love and Good Sense ) contain a wealth of information about typical feeding development and successful parent–child interaction during feeding. 3. Suzanne Evans Morris Suzanne is a paediatric speech pathologist who is considered one of the “grandmothers” of paediatric dysphagia management, and generated much of the early literature in our field. Her textbook ( Pre-Feeding Skills , which she authored along with Marsha Dunn Klein) is widely considered essential foundational reading in paediatric feeding and dysphagia management. Her website, New Visions (www.new-vis.com), contains a lot of useful information and research papers on various topics related to paediatric feeding disorders, including, feeding development, impact of gastrointestinal and respiratory illness on feeding, and sensorimotor challenges. 4. Feeding Matters Feeding Matters is a not-for-profit group established by parents of children with feeding disorders to provide Pamela Dodrill is a paediatric speech pathologist who specialises in paediatric feeding and dysphagia. Pamela worked as part of the feeding team at the now closed Royal Children’s Hospital in Brisbane for over a decade, and completed her PhD in infant feeding difficulties through the Children’s Nutrition Research Centre. More recently, she has relocated to Boston to work as part of the feeding team at Boston Children’s Hospital, and Brigham and Women’s Hospital Neonatal Intensive Care Unit. Pamela has numerous publications in journals and textbooks on the topic of paediatric feeding and dysphagia, and is regularly invited speaker at international medical conferences on this topic. Here are her Top 10 resources.

183

JCPSLP Volume 20, Number 3 2018

www.speechpathologyaustralia.org.au